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Description:Cure SMA provides support to patients and families affected by spinal muscular atrophy and funds and directs research leading the way to a cure for SMA.
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Skip to content Twitter Facebook Instagram YouTube Login | SMA About SMA Overview Types of SMA Genetics Testing & Diagnosis Newborn Screening Living with SMA Overview Newly Diagnosed Infants and Children Teens and Adults Carriers of SMA Treatment Overview Spinraza Zolgensma Risdiplam Handling Medical Issues Overview Musculoskeletal Nutrition Breathing Risks & Care Quality of Life FAQs & Glossary Care Series Booklets Directions Newsletters Support & Care Cure SMA Care Center Network Local, evidenced-based care centers, designed to improve the lives of those with SMA. LEARN MORE Local Support Cure SMA offers a variety of ways to get involved and connect with your local community. Find out more National Support There are nationwide programs available for all families affected by SMA in the US. Find out more Treatment Centers News Contact Us Research Our Strategy Overview Basic Research Drug Discovery Clinical Trials Latest Advances Overview Therapeutic Approaches SMA Drug Pipeline For Researchers Overview Funding Opportunities Research & Clinical Care Meeting Recruit for Clinical Trials Research Publications Read the latest issue of Compass, Cure SMA’s research publication. Learn more Healthcare Providers About SMA for HCPs Clinical Guidelines Research & Clinical Care Meeting Current Educational Programs Get Involved Ways to Give Overview Donate Fundraise Planned Giving Volunteer Event Calendar Cure SMA Events Annual SMA Conference Advocacy Many state and federal policies impact nearly all aspects of life for those affected by SMA. Learn more Cure SMA Store Support our mission and raise awareness with Cure SMA merchandise. Shop now About Cure SMA Mission and Values Team and Board National Partners Chapters Annual Reports and Financials Media Contact Us DONATE Search for: SMA About SMA Overview Types of SMA Genetics Testing & Diagnosis Newborn Screening Living with SMA Overview Newly Diagnosed Infants and Children Teens and Adults Carriers of SMA Treatment Overview Spinraza Zolgensma Risdiplam Handling Medical Issues Overview Musculoskeletal Nutrition Breathing Risks & Care Quality of Life FAQs & Glossary Care Series Booklets Directions Newsletters Support & Care Cure SMA Care Center Network Local, evidenced-based care centers, designed to improve the lives of those with SMA. LEARN MORE Local Support Cure SMA offers a variety of ways to get involved and connect with your local community. Find out more National Support There are nationwide programs available for all families affected by SMA in the US. Find out more Treatment Centers News Contact Us Research Our Strategy Overview Basic Research Drug Discovery Clinical Trials Latest Advances Overview Therapeutic Approaches SMA Drug Pipeline For Researchers Overview Funding Opportunities Research & Clinical Care Meeting Recruit for Clinical Trials Research Publications Read the latest issue of Compass, Cure SMA’s research publication. Learn more Healthcare Providers About SMA for HCPs Clinical Guidelines Research & Clinical Care Meeting Current Educational Programs Get Involved Ways to Give Overview Donate Fundraise Planned Giving Volunteer Event Calendar Cure SMA Events Annual SMA Conference Advocacy Many state and federal policies impact nearly all aspects of life for those affected by SMA. Learn more Cure SMA Store Support our mission and raise awareness with Cure SMA merchandise. Shop now About Cure SMA Mission and Values Team and Board National Partners Chapters Annual Reports and Financials Media Contact Us DONATE Search for: SMA About SMA Overview Types of SMA Genetics Testing & Diagnosis Newborn Screening Living with SMA Overview Newly Diagnosed Infants and Children Teens and Adults Carriers of SMA Treatment Overview Spinraza Zolgensma Risdiplam Handling Medical Issues Overview Musculoskeletal Nutrition Breathing Risks & Care Quality of Life FAQs & Glossary Care Series Booklets Directions Newsletters Support & Care Cure SMA Care Center Network Local, evidenced-based care centers, designed to improve the lives of those with SMA. LEARN MORE Local Support Cure SMA offers a variety of ways to get involved and connect with your local community. Find out more National Support There are nationwide programs available for all families affected by SMA in the US. Find out more Treatment Centers News Contact Us Research Our Strategy Overview Basic Research Drug Discovery Clinical Trials Latest Advances Overview Therapeutic Approaches SMA Drug Pipeline For Researchers Overview Funding Opportunities Research & Clinical Care Meeting Recruit for Clinical Trials Research Publications Read the latest issue of Compass, Cure SMA’s research publication. Learn more Healthcare Providers About SMA for HCPs Clinical Guidelines Research & Clinical Care Meeting Current Educational Programs Get Involved Ways to Give Overview Donate Fundraise Planned Giving Volunteer Event Calendar Cure SMA Events Annual SMA Conference Advocacy Many state and federal policies impact nearly all aspects of life for those affected by SMA. Learn more Cure SMA Store Support our mission and raise awareness with Cure SMA merchandise. Shop now About Cure SMA Mission and Values Team and Board National Partners Chapters Annual Reports and Financials Media Contact Us DONATE Donate Home Page admin 2020-03-31T07:30:45-05:00 Cure SMA is closely tracking the Coronavirus (COVID-19) situation, with the health, safety, and wellness of the SMA community top-of-mind. Learn more about the virus, general prevention measures, and the latest on Cure SMA events across the country. CLICK HERE FOR THE COVID-19 INFO CENTER Spinal Muscular Atrophy is the leading genetic cause of death for infants. However you are impacted, we have information for you. NEWLY DIAGNOSED LIVING WITH SMA FUNDRAISER RESEARCHER HEALTHCARE PROVIDER SUPPORTER News Feed Leslie Humbel 2020-06-12T16:25:37-05:00 Genentech Announces 2-Year Risdiplam Data From SUNFISH and New Data From JEWELFISH in Infants, Children and Adults with SMA Leslie Humbel 2020-06-12T16:25:37-05:00 June 12th, 2020 | Genentech, a member of the Roche Group, shared two-year data from Part 1 of its pivotal SUNFISH trial in ... Leslie Humbel 2020-06-12T16:25:08-05:00 Biogen Shares Results from Landmark NURTURE Study of Pre-Symptomatic SMA Patients Treated with Spinraza Leslie Humbel 2020-06-12T16:25:08-05:00 June 10th, 2020 | Biogen, Inc., today announced new results from NURTURE, the longest study of pre-symptomatic patients with spinal muscular atrophy (SMA), ... Leslie Humbel 2020-06-07T20:01:56-05:00 2020 Virtual SMA Conference Booklet is Now Available Online Leslie Humbel 2020-06-07T20:01:56-05:00 June 5th, 2020 | Cure SMA is pleased to announce that the 2020 Virtual SMA Conference booklet is now available for download. The booklet includes important ... All News Community Spotlight Sarah McCall 2020-03-23T11:25:45-05:00 Community Spotlight: Raising Money for Cure SMA, One Cookie at a Time Sarah McCall 2020-03-23T11:25:45-05:00 March 23rd, 2020 | Dana Perrella is a 9-year-old on a mission to raise $50,000 for spinal muscular atrophy (SMA) research in 2020. She began ... Michelle Pantoja 2020-02-26T14:40:46-06:00 Community Spotlight: Cesar Rodrigues Michelle Pantoja 2020-02-26T14:40:46-06:00 February 26th, 2020 | The Power of the Spirit to Overcome Cesar Rodrigues is a 32-year-old abstract painter from Worcester, Mass. His paintings have ... Michelle Pantoja 2019-12-23T15:11:57-06:00 Community Spotlight: The Forcier Family Michelle Pantoja 2019-12-23T15:11:57-06:00 December 23rd, 2019 | Kara and Ryan Forcier, of Stillwater, Minn., were on a rollercoaster almost immediately after the birth of their son, Zachary. Zachary ... View All Cure SMA is committed to local support. Find resources or a treatment site in your area. FIND A LOCATION Since 1984, we’ve invested $80 million in the research that has made today’s breakthroughs possible. We advance a comprehens...
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